Management of coeliac disease patients after the confirmation of diagnosis in Central Europe

Riznik, Petra; De Leo, Luigina; Dolinsek, Jasmina; Gyimesi, Judit; Klemenak, Martina; Koletzko, Berthold; Koletzko, Sibylle; Koltai, Tunde; Korponay-Szabo, Ilma Rita; Krencnik, Tomaz; Milinovic, Marina; Not, Tarcisio; Palcevski, Goran; Sblattero, Daniele; Werkstetter, Katharina Julia und Dolinsek, Jernej (2022): Management of coeliac disease patients after the confirmation of diagnosis in Central Europe. In: European Journal of Gastroenterology & Hepatology, Bd. 34, Nr. 1: S. 27-32

Abstract

Background Recently published paediatric guidelines for diagnosing coeliac disease do not include recommendations on the follow-up of coeliac disease patients. Goal The aim of this study was to assess the management practices and experience of coeliac disease patients with their follow-up appointments in Central Europe. Study Gastroenterologists and coeliac disease patients in five Central European countries were asked to complete the web-based questionnaire focusing on coeliac disease management practices. Results Answers from 147 gastroenterologists and 2041 coeliac disease patients were available for the analysis. More than half of the gastroenterologists (58.5%) schedule the first follow-up visit within 3 months after the diagnosis. At follow-up, tissue transglutaminase antibodies are checked in almost all patients (95.9%). Approximately two-thirds (60.7%) of gastroenterologists refer all of their patients to the dietitian at diagnosis. Similarly, 42.8% of coeliac disease patients reported that they had not been appointed to a dietitian. Almost one-third of coeliac disease patients (30.8%) reported that they had no follow-up appointments with gastroenterologist at all. Conclusions Follow-up of coeliac disease patients is suboptimal in Central Europe. Many patients are not followed regularly. A lot of patients are not referred to a dietitian. The recommendations on the optimal follow-up of coeliac disease patients are needed in order to improve patient care.

• Dokumententyp: Zeitschriftenartikel
• Fakultät: Medizin
• Themengebiete: 600 Technik, Medizin, angewandte Wissenschaften > 610 Medizin und Gesundheit
• ISSN: 0954-691X
• Sprache: Englisch