Research in progress: put the orphanage out of business

Bush, Andrew; Anthony, Gisela; Barbato, Angelo; Cunningham, Steve; Clement, Annick; Epaud, R.; Gilbert, Carlee; Goldbeck, Lutz; Kronfeld, Kai; Nicholson, Andrew G.; Schwerk, Nicolaus; Griese, Matthias; Collaborators, Ch-ILD (October 2013): Research in progress: put the orphanage out of business. In: Thorax, Vol. 68, No. 10: pp. 971-973

Abstract

Paediatric interstitial lung disease (ILD) is rare and diverse, meaning no single centre will see sufficient children to perform the studies needed to make progress. This EU FP-7 grant will standardise the evaluation of these rare conditions by establishing pan-European multidisciplinary expert panels and establish consensus on treatment protocols and standard operating procedures across Europe. We will work with patient groups to determine optimal treatment end-points and biomarkers. A biobank will be established as a Europe-wide resource for mechanistic studies. Ultimately we aim to do the first randomised controlled trial of a pharmacological treatment in paediatric ILD.

• Item Type: Journal article
• Keywords: COPD epidemiology
• Faculties: Medicine
• Subjects: 600 Technology > 610 Medicine and health
• ISSN: 0040-6376
• Alliance/National Licence: This publication is with permission of the rights owner freely accessible due to an Alliance licence and a national licence (funded by the DFG, German Research Foundation) respectively.
• Annotation: Published Online First 21 February 2013
• Language: English