Matching Study to Registry data: Maintaining Data Privacy in a Study on Family based Colorectal Cancer

Nasseh, Daniel; Engel, Jutta; Mansmann, Ulrich; Tretter, Werner und Stausberg, Jürgen (2014): Matching Study to Registry data: Maintaining Data Privacy in a Study on Family based Colorectal Cancer. MIE 2014, Istanbul, September 2014. Lovis, Christian; Séroussi, Brigitte und Hasman, Arie (Hrsg.): In: e-Health – For Continuity of Care, S. 808-812

Abstract

Confidentiality of patient data in the field of medical informatics is an important task. Leaked sensitive information within this data can be adverse to and being abused against a patient. Therefore, when working with medical data, appropriate and secure models which serve as guidelines for different applications are needed. Consequently, this work presents a model for performing a privacy preserving record linkage between study and registry data. The model takes into account seven requirements related to data privacy. Furthermore, this model is exemplified with a study on family based colorectal cancer in Germany. The model is very strict and excludes possible violations towards data privacy protection to a reasonable degree. It should be applicable to similar use cases which are in need of a mapping between medical data of a study and a registry database.

• Dokumententyp: Konferenzbeitrag (Paper)
• Keywords: record linkage, data privacy protection
• Fakultät: Medizin > Institut für Medizinische Informationsverarbeitung, Biometrie und Epidemiologie
• Themengebiete: 000 Informatik, Informationswissenschaft, allgemeine Werke > 004 Informatik ; 600 Technik, Medizin, angewandte Wissenschaften > 610 Medizin und Gesundheit
• Sprache: Englisch