Abstract
Objectives: To design a transitional care checklist to be used by and facilitate the work of health professionals in providing transitional care for children with a chronic rheumatologic disease and their families. Methods: A Delphi-like study among an international expert panel was carried out in four steps: (1) a working group of 6 specialists established a draft;(2) a web-survey among a panel of international experts evaluated it;(3) a 2-day consensus conference with an expert panel discussed items not reaching agreement;(4) a web-survey among the panel of international experts with the list of reformulated items. Results: The first draft of the checklist included 38 items in 3 phases of transition and 5 age groups. Thirty-three international experts evaluated the checklist reaching >= 80% agreement for 26 items and <= 80% for 12. The consensus conference of 12 experts discussed and redefined the 12 items. Twenty-five international experts filled out the web-survey and all items reached a minimum of 80% agreement except one. The final checklist was reached. Conclusions: This Delphi-like study defined what themes should be included and at what age they need to be addressed with patients with a chronic rheumatology disease and their families during transition. This checklist reached a strong international and interdisciplinary consensus while examining transition in a broad way. It should now be spread widely to health professionals to be used by all those who care for adolescents aged >= 12 years at times of transition. It could be transposed to most chronic conditions. Recommendations for further research are given.
| Item Type: | Journal article |
|---|---|
| Faculties: | Medicine |
| Subjects: | 600 Technology > 610 Medicine and health |
| ISSN: | 1297-319X |
| Language: | English |
| Item ID: | 64436 |
| Date Deposited: | 19. Jul 2019, 12:15 |
| Last Modified: | 04. Nov 2020, 13:43 |
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