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Bentley, Sarah; Johnson, Chloe; Exall, Elizabeth; Brohan, Elaine; Lawrance, Rachael; Bennett, Bryan; Bargo, Danielle; Zanotti, Giovanni; Staehler, Michael und Stewart, Grant D. (2021): Improving patient-clinician communication following nephrectomy in renal cell carcinoma: Development, content validation and pilot testing of a conversation aid tool. In: Patient Education and Counseling, Bd. 104, Nr. 1: S. 99-108

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Abstract

Objectives: This study developed, and established the content validity, of a conversation aid tool (CAT) for use in clinical practice with renal cell carcinoma (RCC) patients who receive a curative nephrectomy and are at high-risk of recurrence. The CAT was pilot tested in a sample of RCC patients to establish whether the CAT increases knowledge of RCC, treatment options (such as adjuvant therapy), and care options. Methods: A cross-sectional, mixed methods design was used involving initial, exploratory interviews with RCC patients, RCC specialists and a steering group. Further content validation interviews were conducted with RCC patients and specialists. A web-based survey was conducted with RCC patients (N = 60), to compare the CAT versus a standard of care (SOC) consultation comparator tool on patient knowledge. Results: Findings from exploratory interviews were used to develop the CAT. Content validation interviews demonstrated that the CAT was well understood and relevant to RCC patients. The web-based survey demonstrated that viewing the CAT significantly improved participants knowledge of RCC, and care options, when compared to the SOC. Conclusion: The findings highlight that the CAT is a relevant, comprehensive and well-understood tool for use in the post-nephrectomy consultation. Practice implications: Use of the CAT may increase patient knowledge of RCC and care options. (C) 2020 The Authors. Published by Elsevier B.V.

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